Tuesday, May 1, 2012


Surgery is coming soon.  I hate to announce it when it was postponed last time.  So I will let you know if it's a go when we know.  If your baby has to have Open Heart Surgery then just be prepared it can be canceled the day before and you might break down in tears because your all mentally ready. Well, the best you can be anyway, and then they inform you that you will have to do it all over again in a few weeks/ months (and they really hope you didn't plan your whole life around this). Then you have to call everyone and say "just kidding" it's not happening and explain the whole thing and relive it. Plus then feel guilty because people brought sweet cards, and cute gifts...it's like a wedding that doesn't happen. Then you wonder whats correct in this situation?  Should you return it, or would that be rude...so it's just easier for us to give the call when it's a go. 

I'm nervous, and I don't want to go through with it.  It's funny it's like you just want it to be over with, but you want them to cancel it at the same time.  Oh and I don't like to talk about it.  I have very consciously pushed it out of my mind (just like the manila envelop that came is shoved in the mail drawer) to be dealt with at a later date and if you want to see me in tears then ask about it.  

This surgery isn't a kind where we will see a drastic improvement in our babies way of life. It is preventative surgery for pulmonary hypertension, and an enlarged heart.  It's hard because she will come home sicker (on oxygen, and medication which she doesn't have to take now).  Also heads up because our doctor told us no visitors or going out for two weeks when she gets home.  So now your in the loop and you don't have to ask. 

And to end on a positive note...
Here's some cute pictures of the day.

(white) Kit Kat snatcher

She gets it because...
She's SO BIG!

Her supermodel shot of the day...


  1. All our prayers will continue to be for you & your sweet angel! We love you all and wish it would just go away, but know we love you and will support you (and you won't even have to talk, we'll support you quietly) ;) love you guys so very, very much!

  2. When it happens just know we're thinking of you! We love ya lots!